DISEASE DIRECTORY

Wednesday, January 07, 2009


Neurological Disorders : Hydrocephalus

Associations
Personal Pages
Support Groups
Treatments



  • A Journey to Hydrocephalus - A parent's description of the diagnosis and ongoing adventure of her daughter's life with this disorder.
  • A Miracle Named Kerri - Personal story of Kerri's experiences with congenital hydrocephalus, shunting and a Craniectomy. Photo gallery and poems.
  • Andrew and Anna Fuller - Family pictures and stories by Andrew. Highlights about his little sister, Anna, a shunted hydrocephalic.
  • Ashley Nicole Schmit - Memorial tribute in memory of her sister who was born with hydrocephalus.
  • Hydrocephalus Family Support Group - Offers a place to voice experiences and receive information about hydrocephalus.
  • Kori's Story - Personal information, photos, and updates about Kori, diagnosed with hydrocephalus and shunted at age two months.
  • Laura's Story with her Hydrocephalus - Features their little daughter, Laura. She was born premature, had IVH and hydrocephalus. Read her story and meet the family.
  • Mafalda's Homepage - Experiences with hydrocephalic daughter, information, photos and updates on progress. (English/Portuguese)
  • Melissa's Journey - A personal story of the hope and courage of a young woman's struggles against hydrocephalus and over 40 shunt revisions.
  • Our Little Miracle Baby - An introduction to little Tyler and experiences with hydrocephalus. Email and guestbook available.
  • Rhianna Allen Memorial - A memorial to a special little girl and her dealings with premature birth, hydrocephalus, ventriculoperitoneal shunt(or VP shunts), and premature death.
  • Ryan's Hydrocephalus Page - Details the birth, development, and special needs of this special boy born in 1998 with hydrocephalus.
  • Sarah's Story - Accounts a parents' experiences with their daughter through diagnosis and treatments during her first two years.
  • Simon Allanach's Hydrocephalus - Simon's interests and information about hydrocephalus and personal experiences. Relates causes, treatments, complications, and procedures.
  • Steve Drake's Hydrocephalus - Writings, presentations, reports and bibliographical account of living with hydrocephalus. Resources and related information available.
  • The Rafel's - Family photos, stories and updates. Sarah, oldest of three girls, was born premature and lives with hydrocephalus; shunted since one month old.
  • The Riccio Boys - Photos and family updates on the Riccio brothers. Family updates and hydrocephalus treatment information.
  • VP Shunt Implant - It's a Lifetime Thing - A mother's advice and personal story of raising her daughter. Information and descriptions of diagnostic tests and treatments for hydrocephalus.